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Study seeks details on those who recover

Valley News Staff Writer
Published: 6/8/2020 8:42:11 PM
Modified: 6/8/2020 8:42:05 PM

HANOVER — Dartmouth College computer science professor Temiloluwa Prioleau began teaching a course on data science for health on March 31, right in the middle of the COVID-19 crisis.

Due to the topic and the timing, Prioleau sought to tie the course to the pandemic. In her search for relevant datasets, she noticed that most of the information available was from hospitals. But she couldn’t find datasets for people who hadn’t been hospitalized, which is true of the majority of those who contract the virus.

“It’s hard to learn about something that you have no data on,” she said in a video interview last week.

To fill in the gap, she and a small team have launched a project called C19 Insider Scoop aimed at gathering information from people who have recovered from COVID-19 without hospitalization. The project has given her a way to put her skills to use in helping to address the pandemic.

“Something that’s positive, as opposed to nothing,” she said.

She and the other researchers have developed an anonymous online questionnaire for those who have recovered from COVID-19, which takes 20 to 30 minutes to complete. They also have begun sifting through news stories on the subject, such as a story on people in the Upper Valley who had recovered that ran in the May 31 Sunday Valley News.

The team began recruiting for the project on May 7 by reaching out directly to survivors through online support groups, Priole au said. They’ve met the pro ject’s first milestone by collecting 50 responses and are preparing to publish that data later this month.

“Everything that we learn, we want to make it publicly available,” she said.

So far, the researchers have found that the respondents reported more than 14 different symptoms related to the virus and many have symptoms that continue to linger even after their recovery, according to the project website.

The researchers hope the information they gather can be used to understand the virus, how it is transmitted, which symptoms are associated with it, as well as successful coping strategies. They also aim to shed light on racial disparities associated with COVID-19, which disproportionately affects people of color.

The group will continue to collect responses at least through the month of June, Prioleau said.

For more information or to participate, visit www.c19insider.com.

Nora Doyle-Burr can be reached at ndoyleburr@vnews.com or 603-727-3213.




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