Letter: Understanding a Type of Brain Disorder
To the Editor:
Thank you for the article about Albert Einstein’s colossal corpus callosum. Until just a few decades ago, a diagnosis of a disorder of the corpus callosum could be made only after an autopsy was conducted. Today, through the use of ultrasound, CAT scan or MRI technology, diagnosis of disorders of this part of the brain, which most of us have, can be made even before birth.
The fund of information about disorders of the corpus callosum is steadily increasing. While some people like Einstein may have huge superhighways of neural fibers, others may be born with partial corpora callosa or none at all. Some individuals with disorders of the corpus callosum can be profoundly affected and need constant care and intensive support while others may graduate from college and pass through life much like anyone else.
Estimates of the frequency of this disorder range from seven people in 1,000 to five in 1 million. Just 20 years ago information about the corpus callosum was very limited outside of medical journals. Today the National Organization for Disorders of the Corpus Callosum (NODCC) provides a great deal of valuable information for individuals with disorders of the corpus callosum, their parents and families, educators and those in the medical field.
On July 18-19, 2014, the NODCC will hold a conference in Burlington, Mass. This is the first conference on the East Coast. Attendees will come from across the United States as well as from other countries. One service that the organization provides during the conference weekend is child care so that parents may attend the many informative sessions that will be held. This care is provided by a firm that specializes in care of individuals with many different needs. It is not inexpensive, but it is invaluable.
The committee in charge of the 2014 conference is seeking sponsors for the child care program, sponsors for the conference in general, and donations of items for the silent auction at the conference that serves as a fundraiser for NODCC. Please contact me at 603-795-9406 if you would like further information.
Committee Member, NODCC 2014 Conference